Handbook of Quality of Life in Cancer

Quality of life is an important outcome when treating a cancer patient. Research is vast on the role of quality of life on patients' general wellbeing, responsiveness to treatment, and even mortality. On the other hand, there are several methodological considerations when planning to measure and assess quality of life in cancer patients. This handbook - with authorship that is diverse in terms of perspectives, countries, and fields - aims to fill a gap in the available literature and responds to a number of questions in its 26 chapters:

• What is quality of life and health-related quality of life and why are they important?
• How is quality of life assessed?
• What are the theoretical and methodological considerations when using quality of life outcomes in cancer research?
• How is quality of life useful in routine clinical care?

• How is quality of life impacting different cancer populations in terms of site of the cancer, age, gender, and context? Handbook of Quality of Life in Cancer is a learning and consulting tool that can be used by a diverse audience. It is an essential resource for researchers who wish to use quality of life assessment tools in clinical trials or other types of studies; clinicians who want to develop their understanding of how they can utilize quality of life and how it is important for the patients they care for; and commissioners who wish to see why quality of life may impact population health and health system costs. Students in diverse fields of study (medicine, nursing, psychology, social work, medical sociology, population health, epidemiology, and medical statistics, among others) also would benefit from using the handbook for their studies and for their continuing professional development.

Autorentext

Angelos P. Kassianos, PhD is a senior research fellow at University College London, Department of Applied Health Research, and at University of Cyprus, Departments of Psychology and Computer Science. He is a health psychologist with a public health and behavioral medicine focus. Dr. Kassianos has interests in bio-psycho-social determinants of disease prevention and early diagnosis (mainly cancer), health-related quality of life assessment, vaccination hesitancy and development of digital health interventions.

Inhalt

Dedication

Foreword

Preface

About the Editor and Contributors

list of abbreviations

List of figures

list of tables

Part I: Concepts and Definitions

1. Defining Quality of Life.. #

ANGELOS P. KASSIANOS & STEPHANIE TSOUNTA

2. The Importance of Quality of Life in Cancer Patients. #

STEPHANIE KYRIACOU

Part II: Quality of Life Assessment

3. Using the WHOQOL as a generic measure to assess quality of life during cancer #

BRENDA L. DEN OUDSTEN & SUZANNE M. SKEVINGTON

4. Developing cancer quality of life assessment tools. #

DEBORAH FITZSIMMONS & SALLY WHEELWRIGHT

5. The European Organisation for Research and Treatment of Cancer (EORTC) Measurement System... #

JOHANNES M. GIESINGER & JENS LEHMANN

6. The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: Guidance for Use in Research and Clinical Practice.. #

KIMBERLY A. WEBSTER, J. DEVIN PEIPERT, LAUREN F. LENT, JASON BREDLE, DAVID CELLA

7. Validating Cancer Quality of Life Assessment Tools: Psychometric Considerations #

AMÉLIE ANOTA & EMILIE CHARTON

8. Using New Technologies in Quality of Life Assessment.. #

KEDAR K.V. MATE

9. Modern Psychometric Measurement and Computerized Adaptive Testing #

CONRAD J. HARRISON & CHRISTOPHER J. SIDEY-GIBBONS

Part III: Best-practice Elements when assessing Quality of Life

10. Statistical Considerations in Analyzing Health-Related Quality of Life Data # LYSBETH FLODEN & MELANIE BELL

11. Data Visualization Strategies to Communicate PRO Data to Patients and Clinicians #

MICHAEL D. BRUNDAGE & CLAIRE F. SNYDER

12. Cross-Cultural Considerations in Health-Related Quality of Life in Cancer #

LAILA AKBAR LADAKM, SYEDA FATIMA RAZA, SADORI KHAWAJA

13. Quality of Life and mortality.. #

AMÉLIE ANOTA

14. Decision-Making in the Context of Funding Cancer Therapy.. #

BARBARA DE GRAAF & INGRID COX

15. Satisfaction with Cancer Care.. #

MATHILDE TROSDORF & ANNE BRÉDART

16. Quality of Life and Cancer-Related Fatigue: Prevalence, Assessment and Interventions #

JOACHIM WEIS

17. Quality of Life in Adolescents and Young Adults with Cancer.. #

ANNE-SOPHIE DARLINGTON, SAMANTHA SODERGREN, EMMA LIDINGTON, DANIEL J. VAN DER MEER, OLGA HUSSON

18. Proxy measures for quality of life in cancer.. #

JESSICA ROYDHOUSE & JULIE CAMPBELL

19. The Role of Psychologists and Psychological Approaches in Cancer Care #

MARIANNA ZACHARIA & MARIA KAREKLA

20. The Role of Patient-Reported Outcomes (PROs) in the Improvement of Healthcare Delivery and Service.. #

OLALEKAN LEE AIYEGBUSI, SARAH E. HUGHES, MELANIE J. CALVERT

21. Introduction to Quality of Life in Drug Development.. #

BELLINDA L. KING-KALLIMANIS, LEE JONES, LYNN HOWIE

Part IV: Case Studies of Using Quality of Life Tools for Specific Cancer Types

22. Quality of Life and Breast Cancer.. #

YIOLA MARCOU

23. Quality of Life and Brain Cancer.. #

PIM B. VAN DER MEER, JOHAN A.F. KOEKKOEK, LINDA DIRVEN, MARTIN J.B. TAPHOORN

24. Quality of Life and Colorectal Cancer.. #

SAMANTHA SODERGREN & vassilios vassiliou

25. Quality of Life and Endometrial Cancer.. #

ahmed h. ibrahim, mustafa h. abd el wahab, emad shash

26. Quality of Life and Melanoma.. #