Under Observation: The Interplay Between eHealth and Surveillance

The essays in this book clarify the technical, legal, ethical, and social aspects of the interaction between eHealth technologies and surveillance practices. The book starts out by presenting a theoretical framework on eHealth and surveillance, followed by an introduction to the various ideas on eHealth and surveillance explored in the subsequent chapters. Issues addressed in the chapters include privacy and data protection, social acceptance of eHealth, cost-effective and innovative healthcare, as well as the privacy aspects of employee wellness programs using eHealth, the use of mobile health app data by insurance companies, advertising industry and law enforcement, and the ethics of Big Data use in healthcare. A closing chapter draws on the previous content to explore the notion that people are 'under observation', bringing together two hitherto unrelated streams of scholarship interested in observation: eHealth and surveillance studies. In short, the book represents a first essential step towards cross-fertilization and offers new insights into the legal, ethical and social significance of being 'under observation'.

Contenu

Chapter 1: Introduction (written by the editors).- Part I: Setting the stage .- Chapter 2: Different notions of surveillance in healthcare;Samantha Adams.- Chapter 3: The European legal framework for personal data in health; Nadezhda Purtova.- Part II: Personal health, privacy and autonomy: an uneasy relationship.- Chapter 4: Unravelling Unobtrusiveness in mHealth Design and Use and implications for user's autonomy; Maartje Niezen.- Chapter 5: eHealth and Privacy in U.S. Employer Wellness Programs; Anna Slomovic.- Chapter 6: Sleeping information: describing circuits of knowledge in apps for self-management of sleep disorders;Federica Lucivero, Maartje Niezen and Samantha Adams.- Part III: Surveillance practices for risk management.- Chapter 7: Profiling anomalies, anomalies of profiling: At the crossroads of risk assessments on Dutch youth and the European daChapter 1: Introduction (written by the editors).- Part I: Setting the stage .- Chapter 2: Different notions of surveillance in healthcare;Samantha Adams.- Chapter 3: The European legal framework for personal data in health; Nadezhda Purtova.- Part II: Personal health, privacy and autonomy: an uneasy relationship.- Chapter 4: Unravelling Unobtrusiveness in mHealth Design and Use and implications for user's autonomy; Maartje Niezen.- Chapter 5: eHealth and Privacy in U.S. Employer Wellness Programs; Anna Slomovic.- Chapter 6: Sleeping information: describing circuits of knowledge in apps for self-management of sleep disorders;Federica Lucivero, Maartje Niezen and Samantha Adams.- Part III: Surveillance practices for risk management.- Chapter 7: Profiling anomalies, anomalies of profiling: At the crossroads of risk assessments on Dutch youth and the European data protection regime; Karolina La Fors-Owcinik.- Chapter 8: Selling passive monitoring to manage risk in independent living: Frontline workers in a bind ; Clara Berridge.- Chapter 9: Setting the Context: Use of CCTV inside Mental Health Wards in England; Suki Desai and Majid Yar.- Chapter 10: Veillance and electronic medical records in disease management programs in the Netherlands; Bethany Hipple Walters.- Part IV: (Health) Data for public good .- Chapter 11: Entitled to Privacy: economic perspective on use of health data; Ignacio Cofone.- Chapter 12: Big Data, the e-health bubble and its fix ;Winfried Tilanus.- Chapter 13: Conclusions and reflections (written by editors).ta protection regime; Karolina La Fors-Owcinik.- Chapter 8: Selling passive monitoring to manage risk in independent living: Frontline workers in a bind ; Clara Berridge.- Chapter 9: Setting the Context: Use of CCTV inside Mental Health Wards in England; Suki Desai and Majid Yar.- Chapter 10: Veillance and electronic medical records in disease management programs in the Netherlands; Bethany Hipple Walters.- Part IV: (Health) Data for public good.- Chapter 11: Entitled to Privacy: economic perspective on use of health data; Ignacio Cofone.- Chapter 12: Big Data, the e-health bubble and its fix ;Winfried Tilanus.- Chapter 13: Conclusions and reflections (written by editors).