Narrative medicine is a fresh discipline of health care that helps patients and health professionals to tell and listen to the complex and unique stories of illness. The Principles and Practice of Narrative Medicine expresses the collective experience and discoveries of the originators of the field. Arising at Columbia University in 2000 from roots in the humanities and patient-centered care, narrative medicine draws patients, doctors, nurses, therapists, and health activists together to re-imagine a health care based on trust and trustworthiness, humility, and mutual recognition. Over a decade of education and research has crystallized the goals and methods of narrative medicine, leading to increasingly powerful means to improve the care that patients receive. The methods described in this book harness creativity and insight to help the professionals in being with patients, not just to diagnose and treat them but to bear witness to what they undergo. Narrative medicine training in literary theory, philosophy, narrative ethics, and the creative arts increases clinicians' capacity to perceive the turmoil and suffering borne by patients and to help them to cohere or endure the chaos of illness. Narrative medicine has achieved an international reputation and reach. Many health care settings adopt methods of narrative medicine in teaching and practice. Through the Master of Science in Narrative Medicine graduate program and health professions school curricula at Columbia University, more and more clinicians and scholars have obtained the rigorous training necessary to practice and teach narrative medicine. This text is offered to all who seek the opportunity for disciplined training in narrative medicine. By clearly articulating our principles and practice, this book provides the standards of the field for those who want to join us in seeking authenticity, recognition, affiliation, and justice in a narrative health care.

Auteur

Rita Charon is a general internist and literary scholar at Columbia University who originated the field of narrative medicine and directs the Program in Narrative Medicine at Columbia. She researches, publishes, and lectures extensively on the relationship between narrative knowledge and the care of the sick. Edgar Rivera Colón, Ph.D. teaches at Columbia University's program in Narrative Medicine. Dr. Rivera Colón is a sexuality and gender anthropologist. For the last fifteen years, he has been conducting ethnographic research on New York City's House Ball community. Sayantani DasGupta teaches in the MS Program in Narrative Medicine at Columbia University as well as Columbia's Center for Comparative Literature and Society. She also co-chairs Columbia's University Seminar in Narrative, Health and Social Justice and teaches at the Health Advocacy Program at Sarah Lawrence College. Nellie Hermann was born in Boston, Massachusetts, and lives in Brooklyn, New York. Her second novel, The Season of Migration, was published by FSG in January and was a New York Times Editor's Choice. She is the Creative Director of the Program in Narrative Medicine at Columbia University and has taught and lectured widely on the use of creativity in nontraditional contexts. Craig Irvine is Director of the Masters Program in Narrative Medicine at Columbia University and Director of Education of the Program in Narrative Medicine at the College of Physicians and Surgeons of Columbia University. Eric R. Marcus is Director of the Columbia University Center for Psychoanalytic Training and Research and is a training and supervising analyst there. He is a professor of clinical psychiatry at the Columbia University College of Physicians and Surgeons. Danielle Spencer is a Faculty member of the Program in Narrative Medicine at Columbia University as well as the Einstein-Cardozo Master of Science in Bioethics program in New York. Spencer presents regularly at medical humanities and bioethics conferences and has been published in The Lancet, WIRED, Creative Nonfiction, Esopus and The Hungarian Review. Maura Spiegel has been teaching fiction and film at Columbia University and Barnard College for the past 20 years. She is a founding member of the Program in Narrative Medicine at Columbia College of Physicians and Surgeons, where she offers film courses to first-year medical students.

Contenu

Acknowledgments Introduction Part I: Intersubjectivity Chapter 1. Accounts of Self: Exploring Relationality through Literature Maura Spiegel and Danielle Spencer Introduction Self-Telling: Colm Tóibín and the Need to Tell Monologue and Dialogue: Dostoevsky and Bakhtin Recognition in Bechdel's Fun Home: Thickening the Story Identification and Refusal in Kazou Ishiguro's Never Let Me Go Conclusion Chapter 2. This Is What We Do, and These Things Happen: Experience, Emotion, and Relationality In The Classroom Maura Spiegel and Danielle Spencer Socio-relational dynamics and medical education The Narrative Medicine Classroom / Workshop Conclusion Part II: Dualism, Personhood, and Embodiment Chapter 3: Dualism and its Discontents I: Philosophy, Literature, and Medicine Craig Irvine and Danielle Spencer "Hi. How are you feeling today?": Tales of Alienation in Healthcare Biomedicine in recent history The Cave and the Machine: Philosophical Roots of Dualism Chapter 4: Dualism and its Discontents II: Philosophical Tinctures Craig Irvine and Danielle Spencer Philosophical Tinctures: Phenomenology and Narrative Hermeneutics Philosophical Narratives: Complexity and Multiplicity Soul Chapter 5: Deliver us from Certainty: Training for Narrative Ethics Craig Irvine and Rita Charon Narrative Ethics of Reading Narrative Ethics of Clinical Practice Ethics of Narrative Medicine Part III: Identities in Pedagogy Chapter 6: The Politics of Pedagogy: Cripping, Queering and Un-homing Health Humanities Sayantani DasGupta Introduction Crip Politics and the Medicalization of Health Humanities Queer Politics and the Problems of Intelligibility Un-Homing Narrative Medicine: Pedagogical Frames Conclusion Part IV: Close Reading Chapter 7: Close Reading: The Signature Method of Narrative Medicine Rita Charon The Origin and Fate of Close Reading Why Narrative Medicine Is Committed to Close Reading Close Reading and Its Progeny, Attentive Listening The Interior Processes of Close Reading Close Reading Enacts the Principles of Narrative Medicine Coda Chapter 8: A Framework for Teaching Close Reading Rita Charon One Way to Teach Close Reading Choosing Texts and Creating Prompts Time Space Voice Metaphor Conclusions and Room for Further Thought Part V: Creativity Chapter 9: Creativity: What, Why, and Where? Nellie Hermann Creativity in Our Everyday Lives What is Creative Writing for, particularly in the clinical context? Forms and Dividends of Creative Writing Creative Writing and Reflective Writing Chapter 10: Can Creativity be Taught? Nellie Hermann Strategies for Writing in the Health Professions A Teaching Tool: The Reading Guide for Reflective Writing The Approach to the Writing Student Finally: focus on the creative spark Part VI: Qualitative Ways of Knowing Chapter 11: The Ethnographic Field: Narrative, Visual, Contextual Edgar Rivera Colón Narrative Prelude Demystifying Qualitative Research Methods An Embodied, Reflexive Practice Making the world visible The Ethnographic Witness Part VI: Clinical Practice Chapter 12: A Narrative Transformation of Health and Health Care Eric Marcus and Rita Charon RC Tells the Clinical Story EM: Concepts-Transference and Transitional Space RC: Concepts-Creativity, Reflexivity, Reciprocity Coda Chapter 13: Clinical Contributions of Narrative Medicine Rita Charon Individual Interview/Relationship Techniques Clinician and Health Care Team Development Novel Narrative Practices Clinicians See Author Biographies Bibliography Index