'This book is an inspiring reflection on public and patient involvement. The authors have captured the critical considerations for planning involvement in research, relating how meaningful, relevant and beneficial involvement is only possible when we have considered the reasons for doing it and tackled the structures that support unhelpful power imbalances. -Becki Meakin, General Manager of Shaping Our Lives: A National Network of Service Users and Disabled People, UK This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.

Auteur

Jurgen Grotz, PhD, is the Director of the Institute for Volunteering Research (IVR) at the University of East Anglia, UK. He has co-edited the Palgrave Handbook of Volunteering, Civic Participation, and Nonprofit Associations (2016).

Mary Ledgard is a retired researcher who has served as a trustee of Healthwatch Norfolk, UK, and is currently a PPI representative in the fields of health and social care.

Fiona Poland is Professor of Social Research Methodology at the University of East Anglia, UK and has worked for many years to promote inclusive community research. She is journal editor of Quality in Ageing and Older Adults.

Résumé
This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.

Contenu

Introduction2. Historical and Conceptual Background of Public Involvement3. PPI in Research Practice4. PPI in Research Ethics and Ethics in PPI5. Critical Perspectives on Patient and Public Involvement in Research6. The Coherence Model7. Conclusion.