Family-Oriented Informed Consent

This volume addresses the proper character of patient informed consent to medical treatment and clinical research. The goal is critically to explore the current individually oriented approach to informed consent which grew out of the dominant bioethics movement that arose in the United States in the 1970s. In contrast to that individually oriented approach, this volume explores the importance of family-oriented approaches to informed consent for medical treatment and clinical research. It draws on both East Asian moral resources as well as a critical response to the ways in which the practice of informed consent has developed in the United States

Contenu

I. Dependency, Autonomy, and the Role of the Family.- 1. Dependency, Decisions, and a Family of Care; Jeffrey P. Bishop.- 2. Individually Directed Informed Consent and the Decline of the Family in the West.- Mark J. Cherry; 3. Family and Autonomy: Towards Shared Medical Decision-Making in Light of Confucianism; Jue Wang.- II. Informed Consent: Individual-oriented vs. Family-oriented.- 4. The Ideal of Autonomy and Its Misuse; Kyungsuk Choi.- 5. The Confucian Alternative to the Individual-Oriented Model of Informed Consent: Family and Beyond; Kam-por Yu.- 6. The East Asian Family-Oriented Principle and the Concept of Autonomy; Lawrence Yung.- III. Family Consent in End-of-life Decision Making.- 7. Family Consent in Medical Decision-Making in Taiwan: The Implications of the New Revisions of the Hospice Palliative Care Act; Shui Chuen Lee.- 8. Filial Duty as the Moral Foundation of Caring for the Elderly: Its Possibility and Limitations; Ilhak Lee.- 9. End-of-life Decision Making in Hong Kong: The Appeal of the Shared Decision Making Model; Ho Mun Chan, Doris M.W. Tse, Kam Hung Wong, Julian Chuk-Ling Lai, Chun Kit Chui.- IV. Risk Assuming, Organ Donation, Medical Research and the Family.- 10. Families and Medical Decisions to Assume Risks for the Benefit of Others; Ana Iltis.- 11. On Family Informed Consent in the Legislation of Organ Donation in China; Yu Cai.- 12. The Informed Consent of Human Medical Research in Mainland China: A Family-Based Binary Decision Model; Rui Deng.- V. Family Shared Decision Making, Truth Telling, and Advance Directives.- 13. Toward a Shared Decision: Against the Fiction of the Autonomous Individual; Ryan Nash.- 14. A Confucian Worldview and Family-Based Informed Consent: A Case of Concealing Illness from the Patient in China; Wenqing Zhao.- 15. Towards a Good Practice of Family-Oriented Consent: Reflections on Medical Practice in Taiwan; Hon Chung Wong.- 16. A Family-Oriented Confucian Approach to Advance Directives in End-of-Life Decision Making for Incompetent Elderly Patients; Yaning Yang.- VI. Epilogue.- 17. Families and Individuals in Medical Decision Making; Lisa M. Rasmussen.- Notes on Contributors.- Index.