Family Caregiving in the New Normal

Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future.

This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment.

A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care.

• Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers
• Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades
• Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives
• Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models
• Examines how existing efficacious models can more effectively reach and serve individual families

Contenu

Foreword

Alan B. Stevens and Rachael Watman

1. Introduction: Family Caregiving in the New Normal

Joseph E. Gaugler and Robert L. Kane Section I: Personal Perspectives: Caregiving in the New Normal

2. Caregiving Roles Reversed: Becoming My Mother's Mother

Michele H. Kimball

3. Complexity and Opportunities in Caregiving: A Story of Holding On and Letting Go

Christine W. Hartmann

4. Caregiver Woes in the Medicare System: A Tale of Two Patients

Jerald Winakur

5. The Caregiving Crucible: Crisis and Opportunity

Emily Kearns Section II: Threats to Family Caregiving in the United States

6. Factors Affecting the Future of Family Caregiving in the United States

Robyn I. Stone

7. Chronic Illness Trends and the Challenges to Family Caregivers: Organizational and Health System Barriers

Jennifer L. Wolff and Barry J. Jacobs

8. Informal Care and Economic Stressors

Courtney Harold Van Houtven Section III: Policy Considerations and Family Caregiving

9. The Policy and Political Environment of Family Caregiving: A Glass Half Full

Debra J. Lipson

10. Help for Family Caregivers Available from Government Programs and Policies

Pamela Doty and Brenda Spillman Section IV: A New Vision for Supporting Caregivers in the Future

11. Translational Research on Caregiving: Missing Links in the Translation Process

Elaine Wethington and Louis D. Burgio

12. Information Technology to Support Aging: Implications for Caregiving

George Demiris

13. Supporting Caregivers of Older Adults in Making Decisions: Current Tools and Future Directions

Tetyana P. Shippee, Kathleen Rowan and Carrie Henning-Smith

14. Person-Centered Approaches to Caregiving

Karen I. Connor, Hilary C. Siebens and Joshua Chodosh

15. The Impact of the Internet and Social Media on Caregiving

Katherina Nikzad-Terhune, Keith A. Anderson and Lori La Bey

16. The Escalating Complexity of Family Caregiving: Meeting the Challenge

Susan C. Reinhard and Lynn Friss Feinberg

17. Caregivers as Therapeutic Agents in Dementia Care: The Context of Caregiving and the Evidence Base for Interventions

Laura N. Gitlin and Nancy Hodgson Conclusion

18. A Perfect Storm? The Future of Family Caregiving

Joseph E. Gaugler and Robert L. Kane