Informal caregivers - family members, friends, and other loved ones - are an essential, uncompensated and significantly burdened extension of the healthcare team. Rapid advances in cancer care, including new drugs and immunotherapies and more sophisticated diagnostic tools, have markedly improved the ability to medically extend lives and enhance survival. As patients are living longer, with today's shorter hospital stays and shift towards increased outpatient care, however, the demands placed on all caregivers and their needs have substantially increased. Cancer Caregivers reveals the field of Psycho-Oncology's exploration of the depth of complexities of caregiving experiences and identifies the vast expanses left to be understood. This text describes the characteristics and experiences of cancer caregivers based on their life stage, relationship to the patient, and ethnic group membership, as well as patients' disease and treatment type. It highlights the significant progress in research focused on the development and dissemination of psychosocial interventions for cancer caregivers, and includes in-depth case studies to illustrate their delivery and application. The text also explores the provision of support to caregivers in the community and the legal and ethical concerns faced by caregivers throughout the caregiving process. Cancer Caregivers offers both fundamental and practical information and is the essential resource for all healthcare professionals who work with patients and families facing cancer.
Auteur
is Assistant Attending Psychologist and director of the Caregivers Clinic at the Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center. She is also an Assistant Professor of Psychology in Psychiatry at Weill Cornell Medical College, New York, New York.
Contenu
Acknowledgements Forward By Ruth McCorkle Preface Section 1 - Describing the Population (1) Who are Informal Cancer Caregivers? Erin E. Kent, PhD, Margaret Longacre, PhD, Wen-Ying Sylvia Chou, PhD, and Michelle A. Mollica, PhD (2) The Burden of Cancer Caregivers Barbara Given, PhD and Charles Given, PhD (3) The Unique Experience of Caregivers Based on their Life Stage and Relationship to the Patient Kristen Litzelman, PhD (4) Burden among Caregivers of Patients with Unique Sites of Cancer and/or Treatment and Comorbid Psychopathology Maria Kryzo-Lacomb, PhD, Tamryn Gray, PhD, Margaret Bevans, PhD, Login George, PhD, and Bill Breitbart, MD (5) Sociocultural Investigation of Cancer Caregiving Patricia B. Pedreira, BS, Hannah-Rose Mitchell, MPH, Amanda Ting, BS, and Youngmee Kim, PhD (6) Measurement of Caregiver Burden - State of the Science and Future Directions Laurie Anderson, MD, Laura C. Polacek, BA, and KimbersonTanco, MD Section 2 - Addressing the Needs of Cancer Caregivers: Empirically Supported Treatments (7) Psychoeducational Interventions for Cancer Family Caregivers J. Nicholas Dionne-Odom, PhD, RN, ACHPN, Marie A. Bakitas, DNSc, APRN, FAAN and Betty Ferrell, PhD, MA, FAAN, FPCN, CHPN (8) FOCUS: A Psychoeducational Program for Cancer Patients and Their Family Caregivers Laurel Northouse PhD, RN, FAAN, Clayton Shuman PhD, RN, Moira Visovatti PhD, RN, Bonnie Dockham LMSW, and Marita Titler PhD, RN, FAAN (9) Cognitive Behavioral Therapy (CBT) for Informal Cancer Caregivers Jamie M. Jacobs, PhD, Lara Traeger, PhD, Emily A. Walsh, BA, and Joseph A. Greer, PhD (10) Problem-Solving Based Interventions Arthur M Nezu, PhD, DHL, ABPP, Christine Maguth Nezu, PhD, ABPP, and Lauren B. Johnson, EdM (11) Family Therapies Tammy A. Schuler, PhD, David W. Kissane, MD, and I. Zaider, PhD Section 3 - Addressing the Needs of Cancer Caregivers: Adaptations of Empirically Supported Treatments (12) CBT for Insomnia for Caregivers Kelly M. Shaffer, PhD, Patricia Carter, PhD, RN, CNS, Sheila N. Garland, PhD, and Allison J. Applebaum, PhD (13) Emotion Regulation Therapy for Cancer Caregivers: Targeting Mechanisms of Distress Aliza A. Panjwani, MA, Mia S. O'Toole, PhD,Allison J. Applebaum, PhD, David M. Fresco, PhD, and Douglas S. Menin, PhD (14) Meaning-Centered Psychotherapy for Cancer Caregivers (MCP-C) Allison Applebaum, PhD Section 4 - Delivery of Support to Caregivers in the Community (15) The Cancer Support Community: A Person-Centered Model of Evidence-Based Cancer Caregiver Support Joanne S. Buzaglo, PhD, Alexandra K. Zaleta, PhD, Margaret L. Longacre, PhD, and Mitch Golant, PhD (16) American Cancer Society's Delivery of Support to Caregivers in the Community Rachel S. Cannady, BS and Katherine Sharpe, MTS (17) CancerCare - A Psychosocial Oncology Support Organization Sarah K. Kelly, MSW, LCSW and William Goeren, LCSW-R, OSW-C, ACSW Section 5 - Future Directions (18) Important Legal Concerns Faced by Informal Cancer Caregivers Debra Wolf, JD and Cristina Pejoves Gorman, JD (19) Conclusions and Future Directions Allison Applebaum, PhD