Healthcare and Big Data

This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commoditiesdata phantoms or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these data phantoms have for patient privacy as well as the very real harm that they can cause.

Fills an important gap in scholarship on Big Data and its social consequences Presents a unique examination of Big Data, patient privacy, and health marketing from a sociological perspective Utilizes a personal and ethnographic lens to investigate how data personhood is constructed Addresses marketing use of private health information

Auteur
Mary F.E. Ebeling is Director of Women's and Gender Studies, and Associate Professor in Sociology at Drexel University, USA. Her research examines the intersections of gender and race, technologies, digital culture, data privacy, marketing and medical capitalism. She was a visiting research fellow in sociology at the University of Surrey, UK, from which she also holds a PhD.

Contenu
Out of Death, A Birth .- The Rise of the Databased Society .- Privacy and Data Phantoms .- Coercive Consent and Digital Health Information .- The Biopolitics of Lively Data .- The Uncanny Lives of Data Commodities .- The Body of Evidence .- Life After Death.