Latin American Interdisciplinary Perspectives on Bioethics and Disabilities

This book provides a critical analysis of the experiences of people with disabilities in Latin America. It covers a wide range of topics related to intellectual and psychosocial disabilities. Written by Latin American researchers and adopting an interdisciplinary perspective, it provides an original sociocultural contribution to bioethics and disability studies literature. It presents an in-depth overview of philosophical, ethical, legal, political and social issues. At the same time, it offers a contribution to the global scientific community inasmuch it discusses theoretical references from South America in connection with those from Europe and the United States. The basic questions dealt with range from criteria for human flourishing to questions of philosophy of mind, and neuroethics through phenomenological and aesthetic approaches to intellectual and psychosocial disabilities. The legal and political investigations explore the rights of those affected and the processes of their self-organization. The authors address the dynamics of medicalization and demedicalization, the practices of psychiatric institutionalization and the treatment of children with antipsychotics. This book appeals to psychologists, social scientists, bioethicists, healthcare personnel, philosophers, and lawyers working with cases related to people with disabilities.

Presents an in-depth overview of legal, political and social issues relevant to Latin American and Caribbean realities Offers a reflection on the impacts of new technologies on disability studies and bioethics Offers a broad range of themes in bioethics and disability using critically-assessed theoretical references

Auteur

Ana Paula Barbosa-Fohrmann: She is Professor of Legal Theory (full-time, with tenure) at the National Law School (FND) of the Federal University of Rio de Janeiro (UFRJ). She is Professor of the Graduate Program in Law. She holds a PhD in Philosophy (2022) from the Graduate Program in Philosophy of UFRJ, one PhD (2007) and two Post-PhDs in Law (2009 and 2013) from the Ruprecht-Karls-Universität Heidelberg. She has a Masters in Public Law (2001) and a Bachelor of Law (1995) from the State University of Rio de Janeiro (UERJ). She was Visiting Professor of Constitutional Law at the Law School of UERJ (2011-2013). She was Research Fellow at the Max Planck Institute for Comparative Public Law and International Law (2008-2010) and Research Assistant at Ruprecht-Karls-Universität Heidelberg, at the Institute of State Law, Constitutional Theory and Philosophy of Law (2006-2008). She is Visiting Professor of the Westfälische Wilhelms-Universität Münster. She is the coordinator of the Research Group on Theory of Human Rights (NTDH). She is a member of the Permanent Commission to Support People with Disabilities at FND / UFRJ. She currently works in the areas of Theory and Philosophy of Law, Human Rights, Law and Literature. Her field of research is interdisciplinary and has been focusing on the relation between Law, Philosophy and the Arts. Her research interests include disability, phenomenological body and the arts; disability and inclusion; cognitive and psychosocial disabilities; disability and non-human animals. She authored: Costa Barbosa, A.P. (2008). Die Menschenwürde im deutschen Grundgesetz und in der brasilianischen Verfassung von 1988. Ein Rechtsvergleich. Münster-Berlin: LIT. She coauthored: Barbosa-Fohrmann, A.P., Barreto, G.A.F. (2017). Are Human Beings with Extreme Mental Disabilities and Animals Comparable? An Account of Personality. In Legal Personhood: Animals, Artificial Intelligence and the Unborn, eds. Visa A.J. Kurki and Tomasz Pietrzykowski, 127-140. Cham: Springer.

Sandra Caponi: She is Full Professor at the Department of Sociology and Political Science of the Federal University of Santa Catarina (UFSC). She graduated in Philosophy by Universidad Nacional de Rosario in Argentina. She holds a Master and a PhD in Logic and Philosophy of Science from the State University of Campinas (UNICAMP) and a first Post-Doc from the University of Picardie (2000). She was a Senior Post-Doc Fellow at EHESS (Paris-France) in 2011. She is currently the coordinator of the Capes-Cofecub Project, an agreement with the University Vincennes-Saint-Denis (Paris VIII), called "The Dissemination of Expert Knowledge in the Field of Childhood". She is the regional Vice-President of the Brazilian Society of Bioethics in Santa Catarina. In 2017 she did a six-month Senior Internship at Universidad de Buenos Aires and a further six months at the Université Paris Diderot (Paris VII). She is a level 1D Productivity Researcher at the National Council for Scientific and Technological Development (CNPq). She was as a Visiting Professor at EHESS (Paris-France), at Collège de France (Paris), at Universidad Nacional de Colombia (Medellín), at the Universidad Nacional de Rosario. Her research area lies in the epistemology and history of psychiatry, medicine and bioethics. She is a Professor at the Interdisciplinary Ph.D Program in Human Sciences and in the Graduate Program in Political Sociology at UFSC. She coordinates the following research group registered at CNPq "Sociology, Philosophy and History of Health Sciences". In 2013, her book Loucos e Degenerados: uma genealogia da psiquiatria ampliada. Rio de Janeiro: Fiocruz was shorlisted for the national 55th Jabuti Prize in the area of Psychology and Psychoanalysis.

Contenu
Part I: SUBJECTS WITH INTELLECTUAL AND PSYCHOSOCIAL DISABILITIES.- Chapter 1. Empathizing with the Intellectually Disabled.- Chapter 2. Experts by Experience, Demedicalization and the Emergence of Alternative Approaches to Mental Health Care: Gaining Autonomy & Medication Management (GAM) in Brazil.- Chapter 3. Practice, Human Flourishing and Centres for Psychosocial Attention: A MacIntyrean Analysis from Both the User's and the Community's Standpoints.- Chapter 4. The Phenomenological Model as a Basis for the Inclusion of People with Intellectual Disabilities and Psychosocial Impact.- Part II: MORAL AND LEGAL AGENCY.- Chapter 5. Argentina's Mental Health Law: Sociocultural Questions regarding the Normative Framework.- Chapter 6. Legislation and Practices of Psychiatric Institutionalization in Brazil: A Foucauldian Interpretation of Barbacena's Holocaust.- Chapter 7. "Nootropics in the Era of Affective Capitalism: Drug Consumption and Discourse Effects".- Chapter 8. The Body in OCemitério dos Vivos by Lima Barreto: An Aesthetic Phenomenological Reflection on the Practice of Norms.- Chapter 9. The Rights of Children with Psychosocial Disabilities and the Prescription of Antipsychotics in Childhood.- Chapter 10. So that in the practice of good manners, she will find a dignified and happy life: Institutional Practices towards Incarcerated Women (Brazil, 1930s).