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Provides a timely examination of the ethical and legal challenges from crises ranging from nuclear accidents to Ebola and bioterrorism
The first book to analyse the EU response to a CBRNE crisis in the aftermath of the new wave of terrorist attacks and threats in Europe
Written by an international panel of leading ethical and legal scholars
Auteur
Dónal O'Mathúna has degrees in pharmacy and bioethics. He is Associate Professor in the School of Nursing and Human Sciences at Dublin City University in Ireland and the College of Nursing at The Ohio State University in the USA. He is widely published in bioethics and has led an EU-funded network examining the developing field of disaster bioethics. As Chair of this COST Action on disaster bioethics, he has helped to bring together a network of scholars, humanitarian organisations, and international organisations to identify, examine and address ethical issues in disasters. This has led to publications and funded research projects on the ethical challenges arising with disasters of both natural and human origins. This work has led to his involvement in expert committees developing ethics guidelines for disasters, including those of the World Health Organization (WHO), the United Nations Children's Fund (UNICEF), the International Committee of the Red Cross (ICRC), andothers. He has a particular interest in how nonideal moral theory can be applied in disasters, on the importance of addressing vulnerability in disasters, and the place of research ethics in disasters. He has a long-standing interest in research ethics more generally, having chaired his university's research ethics committee for a number of years.
Iñigo de Miguel Beriain has degrees in economics, law and philosophy. He is Investigador Distinguido at the University of the Basque Country in Bilbao and IKERBASQUE Research Professor at the Basque Foundation for Science, Bilbao, Spain. He has published four monographs and a huge number of articles and book chapters in bioethics and biolaw. He has participated in several EU funded projects, such as EDEN: End-user driven Demo for Chemical, Biological, Radiological and Explosive (CBRNE); Chimeras and Hybrids in Comparative European and International Research. Scientific, ethical, philosophical and legal aspects; BIOTETHED. Biotechnology Ethics: deepening by research, broadening to future applications and new EU members, permeating education to young scientist; LATINBANKS. Study on the legal and social implications on the creation of banks with human biological material in Latin America; E-ENERCA: New e-Health Services for the European Reference Network on Rare Anaemias; ICGC: International Cancer Genome Consortium; EU-GEI Project: European Network of National Schizophrenia Networks Studying Gene-Environment Interactions. He has also been part of two COST Actions. ISCH COST Action IS1001, Bio-objects and their boundaries: governing matters at the intersection of society, politics, and science and COST Action IS1201, Disaster bioethics. He has been bestowed with the following awards: EXECNA Award for Foreign Commerce, the Víctor Grifolsi Lucas Foundation 2006-2007 Award for Research in Bioethics and the 2008 Award Junta General del Principado de Asturias-SociedadInternacional de Bioética (SIBI).
Contenu
Part I: Introductory Materials.- Foreword (Carlos M Romeo Casabona).- Chapter 1. Introduction (Dónal O'Mathúna, Iñigo de Miguel Beriain).- Chapter 2. Facing a CBRNE crisis: the ethical and legal issues (Andrew Rebera).- Chapter 3. Lessons learned from experiences with CBRNE situations (Nick Gent, Richard Amlot).- Part II: Legal Issues.- Chapter 4. The EU as an actor in CBRNE crisis: a general picture (Roger Roffey).- Chapter 5. Post-Lisbon developments in EU crisis management: the Integrated Political Crisis Response (IPCR) Arrangements (Agnieszka Nimark).- Chapter 6. The solidarity clause: a review (Iñigo de Miguel Beriain).- Chapter 7. The current legal framework on data protection in CBRNE crisis. A general exposition (Asier Urruela Mora).- Chapter 8. The new EU legal framework on data protection. A special analysis of the issues related to major crisis situations (Anna Falcone).- Chapter 9. Breaking the quarantine: Criminal Law and the breach of the enforced isolation order (Emilio Armaza).- Chapter 10. On the limits of scientific responsibility in crisis prevention and response. The L'Aquila case (Andrea Perin).- Chapter 11. Comparing mutuality and solidarity in its application to Disaster Ethics (Chamu Kuppuswamy).- Part III Ethical Issues. Chapter 12. Ethical issues for CBRNE responders: Ethics in the messy world of conflicting duties (Dónal O'Mathúna).- Chapter 13. Ethical issues in preparedness planning and risk reduction for natural disasters and CBRNE events (Pretesh Kiran).- Chapter 14. Ethical frameworks for CBRNE crises: toward shared concepts and their practical application (Irene Jillson).- Chapter 15. Triage issues in a CBRNE crisis (Catherine Bertrand).- Chapter 16. Health care workers obligations in CBRNE crisis situations (Dónal O'Mathúna).- Chapter 17. Communication and social networks in a disaster. The ethical issues involved (Irina Stanciugelu).- Chapter 18. Ethics in the context of research on CBRNE crises (Michael Barilan).- Chapter 19. Clinical trials in crisis situations: ethical issues (Miguel Ángel Ramiro Avilés).- Chapter 20. Addressing ethics in the CBRNE research project, PRACTICE (Dzenan Sahovic).
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